Global Autism Community Research Priorities

Title: Global Autism Community Research Priorities

Description: Most existing research into the research priorities of the autism community – meaning their preferences for what kinds of research should be done – has been conducted in the UK and US. These studies often assume that research priorities in these countries reflect those held globally. However, research priorities likely differ across countries since the experiences and challenges faced by autistic individuals and their families vary greatly across different countries.

Our study seeks to change this by identifying the research priorities of autistic people, family members, and autism professionals from around the world. By understanding these preferences, we can guide future research to focus on what truly matters to these communities, helping to create more meaningful outcomes and improve quality of life for autistic people and their families worldwide.

While anyone in the larger autism community is invited to apply, this specific call aims to prioritize individuals in the Canadian autism community.

Specifics: Study Population:
This study is open to anyone who belongs to the greater autism community, including autistics themselves, professionals working with autistics, and caregivers and family members of autistics.

Participant Obligation:
Participants will fill in an online survey which asks them for some demographic information and then about their priorities for autism research. This will take no longer than an hour (usually less than 30 minutes).
Additional Notes
You will receive £10 (or local currency equivalent) for completing the survey via a gift card.

You can register your interest for the study here: https://bit.ly/AutismResearchPriorities

After you have registered your interest, you will be sent a full invitation to take part soon after.

If you would like to find out more about the study, you can read the attached information sheet or send me an email at chris.dabbs@uleth.ca. This research has been approved by the University of Alberta Research Ethics Board (Pro00157060).

Location: Only-online. The study has been approved by the Ethics Review Board of the University of Alberta.

Project lead: Christopher Dabbs

Study Dates: octobre 7, 2025 to février 1, 2026

Study Website: https://bit.ly/AutismResearchPriorities